ME Global Chronicle 41 – Table of Contents

We are grateful to be able to offer you the 41st issue of the ME Global Chronicle. As usual from the start of this year this Table of Contents is the key to all articles included in it.

We are fully aware that hardly any to no ME-patient will be able to read the whole contents. That’s why each article has its own specific link.

From the editors



Severe ME

Easter with Severe MEWhitney Dafoe, with an introduction of the editors

I just don’t get itshort video of Anil about ME

In Memory of My FriendsNaomi Whittingham

News from the 25% Group

ME & children

‘Tired’ children with MEcartoon Djanko


Pediatric Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue SyndromeOverlaps and OpportunitiesVikram Siberry & Peter Rowe


Think thrice before advising this treatment for Long CovidAlice Rumble



Welcome to the machine – David Black

The role of theology and linguistics in MERenata

Groundbreaking science with a human touchinterview with Prof. Warren Tate

It’s Enterovirus Season AgainAllison May

Be ThereMartine

Health secretary pledges more attention to MEBMJ/MEA

Employees of the Norwegian welfare system (NAV) are asked to discriminate against ME
       patients-symbolic branding  

That’s how we roll – cartoon Fennine

See MERobin De Man

The way you look vs the way you feelAnil van der Zee

ME/CFS: When I sold my wife’s bike I said ‘goodbye’ to a healthy life, for now – Rob O’Brien

A Reflection of MEBill Clayton

My life with ME/CFS: A few pictures of how it feelsSantana Hagedoorn


All Roads lead to RestChristina Baltais

The Why – new book by Hillary Johnson, author of Osler’s Web – Allison May

News from












Isle of Man



The Netherlands

New Zealand

Northern Ireland  


South Africa  






Doctors with ME

Hope 4 ME & Fibro Northern Ireland

ME Association

new The ME/CFS PSP Steering Group   

ME International

ME Research UK


Open Medicine Foundation

Physios for ME  


Smile for ME  25% Group


APPG on ME Rethinking ME: recommendations considered to be the starting position for Government policy  

CDC Letter to Dr. E. Unger

NICE NICE sets out steps NHS must take to implement ME/CFS guideline
also see News from England

Norwegian Parliament Representative proposal to improve the social security rights of ME patients in Norway




The Netherlands

Northern Ireland Spain


United Kingdom


The politics underpinning the neglect of people with ME/CFSJoanne Hunt

The Top 10+ ME/CFS research priorities of the PSP – Action for ME

Impact of imperfect diagnosis in ME/CFS association studiesMalato, Graça, Sepúlveda

Impact of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) on the quality of life of people with ME/CFS and their partners and family members – Vyas, Muirhead, Ravinder Singh, Ephgrave, Finlay

Plasma metabolomics reveals disrupted response and recovery following maximal exercise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Germain, Giloteaux,  Moore, Levine, Chia, Keller, Stevens,  Franconi, Mao, Shungu, Grimson , Hanson

Genetic association study in myalgic encephalomyelitis/chronic fatigue syndrome(ME/CFS) identifies several potential risk loci –  Hajdarevic, Lande, Mehlsen, Rydland, Sosa, Strand, Mella, Pociot, Fluge, Lie, Viken

Volumetric differences in hippocampal subfields and associations with clinical measures in myalgic encephalomyelitis/chronic fatigue syndrome – Thapaliya, Staines, Marshall-Gradisnik, Su, and Barnden  

Circadian rhythm disruption in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Implications for the post-acute sequelae of COVID-19 – Michael J.McCarthy

The Pathobiology of Myalgic Encephalomyelitis: The Case for Neuroglial Failure Renz-Polster, Tremblay, Bienzl, Fischer

Predictors for Developing Severe Myalgic EncephalomyelitisJason, Cotler, Islam, Furst, Katz
Diagnosis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome With Partial Least Squares Discriminant Analysis: Relevance of Blood Extracellular Vesicles – González-Cebrián A] et al.

Neurovascular dysregulation and acute exercise intolerance in ME/CFSJoseph, Pari, Miller, Xiao, Waxman, Systrom

Microclots in Myalgic Encephalomyelitis (Preprint) –  Nunes, Kruger, Proal, Kell & Pretorius

Orthostatic Challenge Causes Distinctive Symptomatic, Hemodynamic and Cognitive Responses in Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Vernon, Funk, Bateman, Stoddard, Hammer, Sullivan, Bell, Abbaszadeh, Lipkin, Komaroff

Relevance of Blood Extracellular VesiclesGonzález-Cebrián A et al.


EMEA Round Table, April 8, 2022 – The second EMEA webinar – ME/CFS in Europe

Finland  – International Conference on Long Covid & ME/CFS

IACFS  2022 Virtual Medical and Scientific Conference

INIM – 2022 INIM Conference

Invest in ME

Sweden – The many faces of the disease

Those precious days – Lavinia Capogna 

Submitting articles at any given moment here
Deadline September 2022-issue: August 31, 2022
Subscribing: send an (empty) mail to
Unsubscribing: ditto to
All earlier issues can be read here and/or here
Comments and/or corrections can be sent to

Thanks to all of you for your precious contributions, be it by submitting materials or by just reading one article.

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The editors

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