ME Global Chronicle 41 – Table of Contents

We are grateful to be able to offer you the 41st issue of the ME Global Chronicle. As usual from the start of this year this Table of Contents is the key to all articles included in it.

We are fully aware that hardly any to no ME-patient will be able to read the whole contents. That’s why each article has its own specific link.

From the editors

Disclaimer

Colofon

Severe ME

Easter with Severe MEWhitney Dafoe, with an introduction of the editors


I just don’t get itshort video of Anil about ME


In Memory of My FriendsNaomi Whittingham


News from the 25% Group

ME & children

‘Tired’ children with MEcartoon Djanko


Eline


Pediatric Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue SyndromeOverlaps and OpportunitiesVikram Siberry & Peter Rowe


ME & GET/CBT

Think thrice before advising this treatment for Long CovidAlice Rumble


Grassroot


Retha


Welcome to the machine – David Black


The role of theology and linguistics in MERenata


Groundbreaking science with a human touchinterview with Prof. Warren Tate


It’s Enterovirus Season AgainAllison May

Be ThereMartine


Health secretary pledges more attention to MEBMJ/MEA


Employees of the Norwegian welfare system (NAV) are asked to discriminate against ME
       patients-symbolic branding  

   
That’s how we roll – cartoon Fennine


See MERobin De Man


The way you look vs the way you feelAnil van der Zee


ME/CFS: When I sold my wife’s bike I said ‘goodbye’ to a healthy life, for now – Rob O’Brien


A Reflection of MEBill Clayton


My life with ME/CFS: A few pictures of how it feelsSantana Hagedoorn


TogetherMarieke


All Roads lead to RestChristina Baltais


The Why – new book by Hillary Johnson, author of Osler’s Web – Allison May


News from

Countries


Australia  

Belgium  

Canada

Czechia 

Denmark

England  

Germany

Finland

France

Ireland  

Isle of Man

Italy

Liechtenstein  

The Netherlands

New Zealand

Northern Ireland  

Norway

South Africa  

Spain  

Sweden

 Switzerland


Organisations


AMMES

Doctors with ME

Hope 4 ME & Fibro Northern Ireland

MEadvocacy.org

ME Association

new The ME/CFS PSP Steering Group   

ME International

ME Research UK

NCNED

Open Medicine Foundation

Physios for ME  

Polybio

Smile for ME  25% Group


Authorities


APPG on ME Rethinking ME: recommendations considered to be the starting position for Government policy  


CDC Letter to Dr. E. Unger


NICE NICE sets out steps NHS must take to implement ME/CFS guideline
also see News from England


Norwegian Parliament Representative proposal to improve the social security rights of ME patients in Norway

Petitions


Australia

Denmark

The Netherlands

Northern Ireland Spain

Sweden

United Kingdom


Science

The politics underpinning the neglect of people with ME/CFSJoanne Hunt


The Top 10+ ME/CFS research priorities of the PSP – Action for ME


Impact of imperfect diagnosis in ME/CFS association studiesMalato, Graça, Sepúlveda


Impact of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) on the quality of life of people with ME/CFS and their partners and family members – Vyas, Muirhead, Ravinder Singh, Ephgrave, Finlay


Plasma metabolomics reveals disrupted response and recovery following maximal exercise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Germain, Giloteaux,  Moore, Levine, Chia, Keller, Stevens,  Franconi, Mao, Shungu, Grimson , Hanson


Genetic association study in myalgic encephalomyelitis/chronic fatigue syndrome(ME/CFS) identifies several potential risk loci –  Hajdarevic, Lande, Mehlsen, Rydland, Sosa, Strand, Mella, Pociot, Fluge, Lie, Viken


Volumetric differences in hippocampal subfields and associations with clinical measures in myalgic encephalomyelitis/chronic fatigue syndrome – Thapaliya, Staines, Marshall-Gradisnik, Su, and Barnden  


Circadian rhythm disruption in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Implications for the post-acute sequelae of COVID-19 – Michael J.McCarthy


The Pathobiology of Myalgic Encephalomyelitis: The Case for Neuroglial Failure Renz-Polster, Tremblay, Bienzl, Fischer

Predictors for Developing Severe Myalgic EncephalomyelitisJason, Cotler, Islam, Furst, Katz
Diagnosis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome With Partial Least Squares Discriminant Analysis: Relevance of Blood Extracellular Vesicles – González-Cebrián A] et al.


Neurovascular dysregulation and acute exercise intolerance in ME/CFSJoseph, Pari, Miller, Xiao, Waxman, Systrom


Microclots in Myalgic Encephalomyelitis (Preprint) –  Nunes, Kruger, Proal, Kell & Pretorius


Orthostatic Challenge Causes Distinctive Symptomatic, Hemodynamic and Cognitive Responses in Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Vernon, Funk, Bateman, Stoddard, Hammer, Sullivan, Bell, Abbaszadeh, Lipkin, Komaroff



Relevance of Blood Extracellular VesiclesGonzález-Cebrián A et al.

Events


EMEA Round Table, April 8, 2022 – The second EMEA webinar – ME/CFS in Europe


Finland  – International Conference on Long Covid & ME/CFS


IACFS  2022 Virtual Medical and Scientific Conference


INIM – 2022 INIM Conference


Invest in ME


Sweden – The many faces of the disease

Those precious days – Lavinia Capogna 

Submitting articles at any given moment here
Deadline September 2022-issue: August 31, 2022
Subscribing: send an (empty) mail to subscribe@Let-me.be
Unsubscribing: ditto to unsubscribe@let-me.be
All earlier issues can be read here and/or here
Comments and/or corrections can be sent to contribute@let-me.be

Thanks to all of you for your precious contributions, be it by submitting materials or by just reading one article.

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The editors

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