We are grateful to be able to offer you the 41st issue of the ME Global Chronicle. As usual from the start of this year this Table of Contents is the key to all articles included in it.
We are fully aware that hardly any to no ME-patient will be able to read the whole contents. That’s why each article has its own specific link.
Severe ME
Easter with Severe ME – Whitney Dafoe, with an introduction of the editors
I just don’t get it – short video of Anil about ME
In Memory of My Friends – Naomi Whittingham
ME & children
‘Tired’ children with ME – cartoon Djanko
Pediatric Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Overlaps and Opportunities – Vikram Siberry & Peter Rowe
ME & GET/CBT
Think thrice before advising this treatment for Long Covid – Alice Rumble
Grassroot
Welcome to the machine – David Black
The role of theology and linguistics in ME– Renata
Groundbreaking science with a human touch – interview with Prof. Warren Tate
It’s Enterovirus Season Again – Allison May
Be There – Martine
Health secretary pledges more attention to ME – BMJ/MEA
Employees of the Norwegian welfare system (NAV) are asked to discriminate against ME
patients-symbolic branding
That’s how we roll – cartoon Fennine
See ME – Robin De Man
The way you look vs the way you feel – Anil van der Zee
ME/CFS: When I sold my wife’s bike I said ‘goodbye’ to a healthy life, for now – Rob O’Brien
A Reflection of ME – Bill Clayton
My life with ME/CFS: A few pictures of how it feels – Santana Hagedoorn
Together – Marieke
All Roads lead to Rest – Christina Baltais
The Why – new book by Hillary Johnson, author of Osler’s Web – Allison May
News from
Countries
Organisations
Hope 4 ME & Fibro Northern Ireland
new The ME/CFS PSP Steering Group
Authorities
APPG on ME Rethinking ME: recommendations considered to be the starting position for Government policy
NICE NICE sets out steps NHS must take to implement ME/CFS guideline
also see News from England
Norwegian Parliament Representative proposal to improve the social security rights of ME patients in Norway
Petitions
Science
The politics underpinning the neglect of people with ME/CFS – Joanne Hunt
The Top 10+ ME/CFS research priorities of the PSP – Action for ME
Impact of imperfect diagnosis in ME/CFS association studies – Malato, Graça, Sepúlveda
Impact of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) on the quality of life of people with ME/CFS and their partners and family members – Vyas, Muirhead, Ravinder Singh, Ephgrave, Finlay
Plasma metabolomics reveals disrupted response and recovery following maximal exercise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Germain, Giloteaux, Moore, Levine, Chia, Keller, Stevens, Franconi, Mao, Shungu, Grimson , Hanson
Genetic association study in myalgic encephalomyelitis/chronic fatigue syndrome(ME/CFS) identifies several potential risk loci – Hajdarevic, Lande, Mehlsen, Rydland, Sosa, Strand, Mella, Pociot, Fluge, Lie, Viken
Volumetric differences in hippocampal subfields and associations with clinical measures in myalgic encephalomyelitis/chronic fatigue syndrome – Thapaliya, Staines, Marshall-Gradisnik, Su, and Barnden
Circadian rhythm disruption in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Implications for the post-acute sequelae of COVID-19 – Michael J.McCarthy
The Pathobiology of Myalgic Encephalomyelitis: The Case for Neuroglial Failure – Renz-Polster, Tremblay, Bienzl, Fischer
Predictors for Developing Severe Myalgic Encephalomyelitis – Jason, Cotler, Islam, Furst, Katz
Diagnosis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome With Partial Least Squares Discriminant Analysis: Relevance of Blood Extracellular Vesicles – González-Cebrián A] et al.
Neurovascular dysregulation and acute exercise intolerance in ME/CFS – Joseph, Pari, Miller, Xiao, Waxman, Systrom
Microclots in Myalgic Encephalomyelitis (Preprint) – Nunes, Kruger, Proal, Kell & Pretorius
Orthostatic Challenge Causes Distinctive Symptomatic, Hemodynamic and Cognitive Responses in Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Vernon, Funk, Bateman, Stoddard, Hammer, Sullivan, Bell, Abbaszadeh, Lipkin, Komaroff
Relevance of Blood Extracellular Vesicles – González-Cebrián A et al.
Events
EMEA Round Table, April 8, 2022 – The second EMEA webinar – ME/CFS in Europe
Finland – International Conference on Long Covid & ME/CFS
IACFS 2022 Virtual Medical and Scientific Conference
INIM – 2022 INIM Conference
Sweden – The many faces of the disease
Those precious days – Lavinia Capogna
Submitting articles at any given moment here
Deadline September 2022-issue: August 31, 2022
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All earlier issues can be read here and/or here
Comments and/or corrections can be sent to contribute@let-me.be
Thanks to all of you for your precious contributions, be it by submitting materials or by just reading one article.
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The editors
